Jordan, 14, has been on the Modified Atkins Diet to control seizures since September 2009. He follows a strict diet therapy and is now seizure free. Some of his favorite activities are fencing, ping pong, computer gaming with friends, reading and spoiling his pet cat. He is also an avid history buff. Here are a few thoughts he wanted to share on coping with epilepsy:
Kids don’t need to be ashamed of epilepsy, as if it’s something to hide. It’s not. Many famous people in history had epilepsy including Alexander the Great, Julius Caesar, and Peter the Great. They all had epilepsy and that didn’t stop them from excelling to greatness. In fact, it helped them have an attitude of perseverance. We can learn from these great men of history.
A seizure does not change your worth or your character. Dropping to the ground doesn’t change the real “you” inside. Though it may affect your way of thinking, it doesn’t have to go too deep or make you feel worthless.
When I first started having seizures I didn’t really know what they were. I was frightened but now I know it’s a normal reaction. Fear can play funny tricks on you sometimes. It can make you scared of something you don’t have to be afraid of, but fear can only go as far as you let it go. If you have a seizure, try to stay calm and think about something nice that you remember. (And afterwards some of your mother’s favorite cooking should cheer you up!)
Throughout the time I had seizures I remember what kept me going was the fact that I wasn’t having seizures 24/7. I was still living a life the rest of the time. I didn’t need to spend all my time worrying about when my next seizure might come or what it would be like. Epilepsy can help you overcome your fears about other subjects and change your attitude about life. The key? Don’t give up!
(Jordan, age 14)